ABQ City councilor’s family starts multi-million-dollar research fund for rare disease
It’s a rare genetic disorder that impacts a small population, and due to limited research, much remains unknown about ...
Politico Europe2d
Doctors present first barrier for rare disease patients
Overcoming the doctor’s ego is a first hurdle for many rare disease patients in search of a diagnosis. This article is the ...
Blind Brisbane toddler fights for life against rare disease
Leaha Miller is used to strangers staring at her little girl, Ellie, but she just wishes they would take a moment to stop and ...
Star Phoenix on MSN15h
Province, feds sign $40M agreement to improve access to drugs for rare diseases
On Friday at Jim Pattison Children’s Hospital in Saskatoon, federal Health Minister Mark Holland and provincial Health ...
Crypto Holiday Miracle: $MIRA Raises Millions For Rare Disease
A heartwarming and unexpected story has captured the spirit of the holiday season as a memecoin moons to support medical ...
CTV News12h
Saskatchewan health minister signs on to federal deal for rare disease drugs
Saskatchewan Health Minister Jeremy Cockrill has signed a deal with the federal government to expand access to medication for ...
Clinical trial provides hope for Mass. child with rare genetic disorder
A RARE AND FATAL DEGENERATIVE DISEASE THAT CAUSES PROGRESSIVE DAMAGE TO NERVE CELLS AND LOSS OF WHITE MATTER IN THE BRAIN.
Newsmaker 2024: School Board clerk shines light on rare disease that claimed her husband
Stephanie Kern lost her husband to PSP, a disease so rare that only 5 out of every 100,000 people get it. She shares her ...
Discovery at Massachusetts General Hospital creates roadmap for a rare disease
Rithvik wasn’t dealt an easy hand in life. His first symptom — a distended abdomen — was identified during his birth ...
Cases of rare ‘rabbit fever’ disease rose by more than 50 percent in the U.S. in recent years
Cases of tularemia — a rare and sometimes fatal infectious disease that is also known commonly as “rabbit fever” — have risen ...
What is 'rabbit fever', the rare disease up by 56% in the US? Signs and symptoms explained
Tularemia, a rare infectious disease, has seen over a 50% rise in the US recently, affecting children, older men, and ...
Precision gene editing could prevent vision loss from Stargardt disease
Researchers have developed a therapy to treat Stargardt disease, the most common form of inherited macular degeneration, ...