Patients with rare diseases are increasingly working to find and fund their own cures. But should they have to?

Senators made the right decision for America's most vulnerable patients ― now, the House must follow suit. The ORPHAN Cures ...

In May 2025, researchers announced that K.J. Muldoon, a baby boy born without the ability to process dietary protein properly ...

Chiesi is a research-oriented international biopharmaceutical group that develops and markets innovative therapeutic solutions in respiratory health, rare diseases, and specialty care.

Rare Kidney Disease Foundation representatives Sheri and David Dafoe join Bridge Street to talk about the diseases, how they are detected and how they can be treated.

The Chautauqua County Health Department has confirmed two beavers in the Sherman area tested positive for tularemia. Cases of tularemia in animals are rarely detected in WNY; the last confirmed case ...

Chiesi is a research-oriented international biopharmaceutical group that develops and markets innovative therapeutic solutions in respiratory health, rare diseases, and specialty care. The company’s ...

In 2009, the account executive was diagnosed with Advanced IgA nephropathy, a rare kidney disease. Last year, he got the news he dreaded. At 39 years old, he needed a new kidney.

Terminally-ill B.C. girl with extremely rare disease will no longer have drug funded By Richard Zussman & Amy Judd Global News Posted June 18, 2025 3:13 pm Updated June 19, 2025 5:46 pm ...